Capable but slow!

As this year is ending, I can't help but be overwhelmed with gratitude for the way God directed my path.  Last holiday season, I learned of vision therapy services that could help.  No promises, just a maybe.

I have done a lot of testing over the last couple of months.  Initially when the testing started there were some pretty low scores.  My latest scores were a mixed bag of low and astonishingly high and improved.  

It isn't the numbers so much, but what the numbers reveal.  

These wonderfully kind people don't just focus on the numbers. 

So as we reviewed the scores, I heard and received the most encouraging words.  

These scores show, "You are capable, just slow."

I am slower, much slower than I used to be.  It is exceedingly frustrating.  But I am learning, trying to learn to be content.  But what did my heart good was to hear I was capable.  Sometimes in slowness, efficiency becomes an issue.  I have questioned what I have to offer if all the things I used to be good at, I am not good at anymore?   What can I do?  

Add on top of it all, that there is a divorce happening, all sorts of questions about self worth and acceptance and the future just roll around in one's heart, mind and soul.  

But this office of people, they are good and kind.  

They see the struggle.  

They can even measure it. 

They see potential and capability. 

They accept. 

My latest appointment was to announce, I have graduated.  I am moving into monthly appointments and then will be released from therapy!  I am "passing" where I need to improve.  I have to admit there was some anxiety, because even the vision issues are still variable.  Not as much, but still... So the doctor and I talked.  Variability, it is there to stay. I will have to do what I need to do to take care of myself and thus limit variability and then accept when life goes awry and adjust.  Maybe one day as the brain heals and develops new pathways there will be less variability.  But the anxiety was still there.  I asked him about our last conversation when he stated if I could reach a certain "percentage" then there would be a hope that  I would be "average in functioning".  Related to my concerns about divorce, eventually needing to work, medical prognosis of another doctor and just general concerns and worries.  If I am slow and not "good" at what I used to be "good" at then what?  Bless this man's heart... I believe God just entered the room that moment and spoke through him.  

"Knowing what I know about you, as an employer, I would expect it would take you longer to learn (train) things.  I would expect you might be more forgetful and need reminders and make more mistakes. If I didn't know any of this about you, I might not realize there was an underlying condition at all. I might wonder why you can't remember or why you keep making mistakes and why you haven't learned it yet, but I have experienced this with other people."  His compassion and kindness just overwhelmed me.  You see I have been asking these kind of questions for a while.  His words that he chose at that moment communicated acceptance and hope.  

Then the doctor took on a father/uncle type demeanor and gave me some firm advice and instructions about the future and different options I should look into and consider.  Then he provided me with details regarding therapy with speech and language pathologists that could benefit my vision and speech. (This bit of hope was so important, especially since my speech is a huge concern about what kind of job I can have when my speech is variable.)  Then he said, "Merry Christmas and see you at your next appointment!"

The demeanors of my care providers are unique and greatly varied.  While all of them are honest, some are more able to present facts in a way truth is acknowledged but encouragement and hope is also offered.  

More good news ~

After my last post about test results, I worked up my courage to share with my therapists.  I told them how much I appreciated hearing the test results and having them compared to when I started.  I told them I had been struggling with discouragement and just wondering how things were going.  Even though I had a few tangible "new" abilities it is sometimes difficult to notice improvements when the changes occur gradually.
Bless her beautiful heart, she told me she just had another client tell her the same thing and she took her through her chart and showed her the improvements.
So we sped through the process of getting my next week planned out and she opened the notebook.

Just that day, I did a task I had not done in months.  When I first attempted it, I was far from passing. Last Tuesday, I was still not passing, but I was so much closer that the idea of passing is conceivable!
Over and over again she showed me my initial scores.  They were so low.  She showed me over and over how I improved.  My first week few weeks she told me they had to make so many modifications to just the basic exercises.  She had never experienced a need to do this in all her years working in vision therapy.  Never.  Last Tuesday, they gave me an exercise typically given to clients who are exiting the weekly appointment routine and moving forward into more independent work.  Tears.  Good tears.  I may not "see" what is happening, but it is happening.

She ended the appointment with the news I will be going through a lot more testing soon.  More good news to come.

This is incredibly encouraging.  I am entering winter again.  I have not had a winter season since the accident where I felt confident in how I process things visually. Christmas lights, dark earlier in the day.  I am hopeful and cautious. I know only time will tell.  For now, I celebrate that in my peripheral vision, I can see doorknobs and recognize them.  As I type here, I can see the lamp to my left and clearly make out its lines and I can see the pillow to my right and make out the lines in the pattern.  Fatigue is always a factor and it is early in this day.  For this moment though I rejoice in these things!

I did the week's homework and what had me groaning in the office last week has been a confidence booster as I have experienced the exercises becoming somewhat easier.  

Grateful seems such a small word for the fullness I fill in my heart.

When the blank after Projected Outcome is left blank...

Earlier this year, found me in  a doctor's office.  Going through more tests.  More evaluations. Trying to not get my hopes up.  

Oh, the twists and turns which had brought me to that moment in that chair.  Listening to the medical providers explain test results.   In the process of explaining, they verbalized what I was experiencing and couldn't explain. They did it so beautifully. The relief that I felt.  The joy. The comfort. And oh the tears that flowed later.  To be known.  To be understood. To not have to explain.  Just a taste of what it is like with God, my Father.  He loves me, He understands. I don't have to have words.  He knows.  For a brief moment, while I sat in that chair, I experienced a comfort and peace in knowing He was leading and providing for me.

So when all the explaining was done, what to do about the problem needed to be talked about.  They had a plan.  There were things that could be done.  BUT..
But... I am pretty used to the word but...

But in my case they could offer no guarantees.  When a brain is injured and damaged, there are no guarantees.  The brain is a mystery.  Damaged parts stay damaged. New pathways have to be created.  How those pathways form or if they would form was a question no one could answer or predict.  They would be willing to work with me.  They had worked with a number of people who had suffered brain injuries and strokes. They were familiar with the struggles. They had experienced success stories.  They just couldn't offer a projected outcome.